Tuesday, July 26, 2011

No Jive, Live, from the Brigham

Hello to all my friends and followers, today is my second day in the hospital at the Brigham and I wanted to give everyone an update.  Yesterday was check in day, most of the day was getting settled in my room and filling forms, shaking hands and finding drawers to unpack and store my draws.
Today my pre-transplant chemotherapy started, it was a full day of High-dose Melphalan Chemotherapy.  My previous Chemotherapy was specifically targeting my myeloma cancer cells by interfering with the division of cancer cells, and when they can't divide, they die out. It selectively kills cells which are dividing rapidly, as cancer cells tend to do. The high-dose Melphalan is the most common chemotherapy regimen used to kill residual myeloma cells just before stem cell transplantation.
Tomorrow will be more of the same to prepare me for my stem cell transplantation on Thursday.
That’s all for now, Chemo Ken...
Note: The Red dogs had to be separated during my hospital stay. They are in good hands with relatives and very special friends.  We did receive an e-mail today from “Murphy” asking us if she could stay with our friends for the rest of the summer; we suspect it’s because of her new boyfriend “Louie”.

Don’t forget to check my main blog for all my weekly updates & cartoons at: http://chemokenandthereddogs.blogspot.com/

Sunday, July 24, 2011

Hello to all my friends and followers!

Hello to all my friends and followers, today is Sunday July 24th my last day before entering the hospital. Tomorrow starts my final step in a long journey towards recovery; my stem cell transplant will require a 3 week stay in the hospital followed by 100 days of recovery at home.
I’ll be staying at Brigham and Women’s hospital in Boston for my transplant and recovery; I’ll let everyone know the details on visiting hours, etc.
While there I plan on rating the food for them (No green Jell-O for me!). I’ll have to get used to the old 19” TV mounted strategically on the ceiling at an ungodly angle, how do I feel the nurse will ask? “Fine except for a stiff neck”!  Ha ha… I hope to be able to post up dates every other day if possible.
Theresa and I just drove around the waterfront in Swampscott and Nahant and saw one of the most beautiful sunsets we had ever seen, we believe this was a positive sign from God, who else could paint a sky like that!
Above all I’ll try hard to maintain a sense of humor and stay positive…

Don’t forget to check my main blog for all my weekly updates at: http://chemokenandthereddogs.blogspot.com/
Chemo Ken and the Red Dogs

Monday, July 18, 2011

“Real Men” don’t need signs!

OK now, all you guys out there let’s all admit it…sooner or later we all hear that familiar voice in the car say “Honey (or insert...”significant other”, hey you…etc!) I think the sign back there said turn right up ahead”. Come on now, real men don’t need signs! “Take a right for Topeka”, sounds to us like “hea… how about a beer and can I buy you a new speaker”! Men are just born with that natural innate sense of direction, a GPS system build right into our brains. That is, until the battery dies when we are about 17yrs old!
After that, we all fall back to our other god given brain tracking system; you know it’s the “I know how to get there” instinct. We all possess this instinct, we are like a Cherokee Indian tracking a buffalo across the mountains, we don’t need no stinkin maps, we don’t care what the GPS say’s, forget what that sign back there said, detour ahead bridge out, sounds like “Don’t detour me, don’t you think I know where I’m going”? “You know, that’s an old looking sign and besides I’ve been this way before”! “That’s right I never told you, it was when I was a kid, I was with my parents”.  It’s like men just always know which way to go and exactly where to turn. ” You can make a u-turn up there”, is just a phrase not in our vocabulary and just cannot be fathomed by our brains.
So, that brings us to this past weekend in Vermont, and to my crusader like quest to find a short cut home through the mountains and streams after a day of swimming with our two soaking wet dogs, a sunburned wife, three empty water bottles, and four soaked towels; as we departed from the secret swimming hole that only the locals can find. Forget the locals, I can find a way to shave 10 or 15 minutes off the way home. That is, I can find a shortcut that you Theresa couldn’t possibly know about, through this dense forest around the many lakes, streams and mountains, and boulders, on this unpaved dirt road with little or no cell service and despite an argumentative cyber voice from my GPS telling me to make a u-turn ahead. “Listen to me honey, that “DEAD END” sign in front of us is old and contradicts the GPS map”, plus “I learned to drive on dirt roads like this”. What could go wrong? I’m turning left here not right”.
So let’s go on to my 1 ½ hour shortcut that took us over a road that I can barely even begin to describe to you, but hey, I’ll try.  First we went up a hill steeper than the main face of Mt Everest, actually that was 40 or 50 hills or more in total, then throw in the 10” to 15” boulders, expertly placed by mother nature in the middle of the road, the trees, shrubs and wild unidentifiable growing things that covered the 6 to 7 foot wide so called road we were on, and the tire ruts from army tanks or something very big and heavy. Then there was the mud, pools of water with unknown depths across the road, (held my breath on these), besides, come on now, we have our bathing suits on and the dogs are already wet.
This was basically a road that an army tank would have struggled to make it through; I believe they would have gone to the right.  But, so what, my expertly build SUV was born for “off road” four wheeling adventures like this. At least that’s what the car salesman told me at the showroom when I bought my sparkling new Acura MDX, you know the clean shiny SUV you always see at the front of every valet parking lot, but  alas, not very often in the off road TV ads!  So on with the story, as we passed the last sign of life, which was 25 or so locals having a barbeque and pig roast in front of their “double wide”. I chose to ignore the ten or so 4X4 pickup trucks parked in their driveway, you know the ones you always see with their frames jacked up 2 to 3 feet higher than normal with tires higher than the roof of my SUV and covered with the obligatory mud.  We drove by them smiling like a couple of hyenas in the zoo determined to press on into the unknown, they stopped their music, put down their beers and looked at us like an alien space ship had just landed in the road in front of them, their jaws dropped when they saw us and knew where we were heading, they were speechless as they all stared at us with our cute little shinny black city slicker SUV, and of course I gave them a nice big wave as we passed. Looking in my rear view mirror I saw them all texting on their cell phones, I thought they were sending a picture to friends of the new Acura MDX model, It wasn’t until an hour later I realize they were really calling 911 and telling the Sheriff to bring a chopper and search dogs!
Well, let’s just say it was a very treacherous road with about 6 or more miles of treachery ahead before we came to the inevitable “DEAD END”, where a rock slide and avalanche from around 1950 had ended the road forever. It was then that I said, “OK, OK, you’re right, let’s make a u-turn and go back”.  Oh my god, go back over the past 6-8 miles that I didn’t think I could make it through coming in, you mean I have to do it twice!!! Alas, on the way back as we passed the locals at the Barbecue, this time they waved and smiled at us as they saw the mud on my truck, they saluted us with their beers raised high. However, we looked back at them this time, and we were the ones shocked and bewildered with blank stares on our faces. Even the dogs had their paws over their eyes at this point; we had to check the filling in our teeth when we got back. Shortly thereafter, I got out of the truck as we came to the 1st paved road we saw, bent down on my knees and kissed the pavement…..The End…
Now  on to my health: the past week I was preparing for my stem cell harvest by getting daily shots of Neulasta at home (Thank you to Theresa and Jolene for giving me those shots, I couldn’t give them to myself!). The neulasta was intended to raise the amount of stem cells in my blood until they are overwhelming in numbers. The body doesn’t’ normally have this many stem cells in the blood so I experienced a number of side effects last week, as noted below. I’m here all day today at the Dana-Farber on a dialysis machine. This machine separates all the stem cells from the regular red & white cells and the platelets in my blood. The goal today is to collect as many as 8 to 10 million cells for my stem cell implant next week and freeze enough for an additional transplant if I have a relapse in the future.
Last week, I experienced some side effects from the Neulasta such as, headaches, lower GI discomfort and severe lower back pain. I’m happy to say that all those symptoms are gone today.  My stem cell counts were off the charts this morning so everything is a go for my harvest today. I’m told that I will feel noticeably better tomorrow after all the stem cells are all harvested. 
That’s all for now, don’t forget to check my main blog for all my updates at: http://chemokenandthereddogs.blogspot.com/

Tuesday, July 5, 2011

Boston Bruins acquire Corvo from the Hurricanes – Mahican Indians acquire Chemo Ken from the Dana Farber Braves!

In an unprecedented trade, the Mahican Indians announced this afternoon that they went outside of the tribe today when they traded “Little running Nose” for “Chemo Ken” of the Dana Farber Braves. The Mahican’s said they needed an experienced “firewalker”!
No, No... This is really true, come on now… it has to be... to make this week’s story work! 
Oh well, on the health and feeling well front, I rated a 3 to 4 on the “frowning face scale” at my vital signs check-in this past week.  My Neuropathy continues to attack my feet …night and day. I have now gone from 100mg a day of Neurontin to 1,200mg a day, and I’m still feeling the fire, flames  and burning in the soles of my feet and toes. Thus…the new job as the Mahican’s “Firewalker”, I’m a shoe in (so to speak!). Rumor at the Indian camp is that if my feet get better, they may burn me at the stake!
The Neuropathy is getting to be old news, the pain of the week is  now the beginning of my bones aching deep down inside, it feels like sharp pains coming from the core or bone marrow of my left leg, hip and lower back. This is where I suffered my injuries in my ski accident last year. It seems that the chemo is attacking my weak spots so it’s going after this past injury. It’s weird but now my leg, hip and back are starting to feel exactly like they did after my surgery. This was the exact same feeling that I had when I came home from the hospital. Hopefully this will all be over within a few weeks after my transplant.
Speaking of the transplant, I went for Chemo last week but my weekly Velcade injection was cancelled by my Doctor. He felt that considering my neuropathy and bone pain, if given a Velcade infusion, the risks would outweigh the results. So that pretty much ends my regular weekly schedule of Chemotherapy injections. Now I’m in preparation mode for my Stem Cell harvest, scheduled for 7/18 & 7/19. Followed by my admission to the hospital on Monday 7/25.
Update on the “BIRDS”…as it turns out, the birds decided to nest in the highest most farthest away and hard to reach, out of the way corner of the roof (now doesn’t that just figure!). Using their surgical tools, they skillfully cut a hole through the soffit into the attic. This gives them unrestricted access to Theresa’s winter clothes, yum yum…my old books, yuck, argh…tastes bad! Several of them were recently spotted flying away from the roof with tinsel stuck in their tails and trailing from their feet! Now we had a handyman type friend come by to climb up to that corner of the roof and fix everything. When he arrived, he and I stood there for a couple of minutes looking up at the corner from the ground, speechless as we crained our necks, cracking our knuckles, made a clucking sound or two followed by a few hmm’s and then an ah ha or two. Finally looking down and facing each other he said, “Hell I’m not climbing way up there” “I’m scared to go that high”. Me too I said! We both agreed, we will take climbing lessons sometime in the future but for now we’ll have to sub this out to a fearless ladder totin roofer!
That’s all for now….Chemo Ken and the Red Dogs